Sexuality in Adult Cancer Patients Living with Enterostomy or Urostomy: A Descriptive Phenomenological Study

Cancer patients with an enterostomy or urostomy face significant physical and psychological challenges that impact their sexuality and quality of life. Despite its importance, this topic is often overlooked in clinical settings. This study explores the lived experiences of these patients regarding their sexual health. Using a descriptive phenomenological approach, researchers performed face-to-face interviews with 33 adult cancer patients living with enterostomy or urostomy at Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS) Regina Elena National Cancer Institute of Rome, Italy. Data were analyzed according to Giorgi’s method to identify core themes. Four primary themes emerged: the emotional weight of surgery, fear of rejection or disgust, the influence of partner reactions on intimacy, and the struggle to find professional guidance. Participants reported reduced desire and altered body image, though many utilized coping strategies like personal resilience and partner support. Stoma surgery profoundly affects sexuality, yet professional support remains inadequate. The study highlights a critical need for multidisciplinary care and proactive communication. Integrating sexual health into routine oncological practice is essential for providing person-centred care and improving overall quality of life.